The Grief of Watching a Parent's Memory Fade
Key Takeaways
- The grief of watching a parent lose their memory is a very real, lonely experience that starts long before the physical funeral takes place.
- Psalm 90:12 teaches us to number our days, urging us to treat our limited time with aging or declining loved ones as short and precious.
- Instead of waiting for the past version of a parent to return, you should focus on loving the version of them who is right in front of you today.
- It is vital to speak the words that need to be said and tell your loved ones what they mean to you while there is still time to do so.
- God is present both with the parent who is experiencing confusion and with the caregiver who is quietly keeping watch over them.
Watching a parent lose their memory is a grief that starts long before anyone dies. Discover why that grief counts, and how numbering your days helps you love the parent who's here today.
There's a grief that comes long before the funeral. It shows up when your father asks the same question three times in an hour, or when your mother calls you by your brother's name. The person who raised you is losing pieces of themselves right in front of you, and there's nothing you can do to stop it. You go through it mostly alone, because the world doesn't have a category for it. There's no casserole for the slow goodbye, no card that says "sorry your mother forgot your wedding." So you wonder whether you're even allowed to grieve someone who's still here.
You are. This episode opens with a woman Bart talked with for his book on caregiving. She cared for her husband through Alzheimer's after his diagnosis in his early 60s, and she promised herself she'd keep him at home no matter what. But the disease kept taking more of him. One day she stood in the middle of a highway with him, cars coming, and hit the end of what she could do alone. Right there she prayed out loud for help.
Scripture speaks straight to that place. Long before any of us faced a diagnosis, Moses prayed in Psalm 90:12, "So teach us to number our days, that we may gain a heart of wisdom." Numbering your days means facing the truth that time with the people you love is short and precious, and letting that shape how you spend it. You may not have the father you had ten years ago. But you still have this version of him, and this version won't be here forever either. So love the one who's here now.
That means speaking the words that need to be said while there's still someone to hear them. It also means bringing what you're grieving to God, who is not far from any of it. He is with your parent, the one losing their memory, holding them even in the confusion. And He is with you, the one keeping watch, seeing every day nobody else sees. You don't have to face the slow goodbye alone. Bart shares what these caregiver interviews have shown him about loving his own people while he has them, and the woman's own conclusion after years of caring for him: "The Lord, he will pull you through it."
BY THE TIME YOU FINISH LISTENING, YOU'LL DISCOVER:
- Why grieving a parent who's still alive is real grief, even without a funeral
- What Psalm 90:12 teaches about numbering your days and loving the parent in front of you
- A simple step for saying the words that need to be said before it's too late
You may be grieving someone who's still here, and that grief counts. Number these days, love the parent who's in front of you today, and bring the rest to the God who never forgets a single name.
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Frequently Asked Questions
Is it normal to grieve the grief of watching a parent's memory fade?
Yes, mourning a parent who is physically alive but losing their cognitive identity is a very real form of anticipatory grief, even if society lacks a category or traditional rituals for it.
What does Psalm 90:12 mean when it talks about numbering your days?
Numbering your days means recognizing that time with the people you love is short and precious, and using that wisdom to intentionally shape how you spend your time with them.
How can I love a parent who no longer remembers things the way they used to?
You can love them by accepting the current version of who they are, saying the things you need to say without waiting for the right moment, and bringing your heavy burdens to God in prayer.
For my upcoming book on Becoming a Resilient
Bart Leger:Caregiver, I sat down with a woman who had cared for her
Bart Leger:husband through Alzheimer's. He was diagnosed in 2014 in his
Bart Leger:early 60s. She retired after 40 years of work to be home with
Bart Leger:him, and she made herself a promise. She would keep him at
Bart Leger:home no matter what. For a while, she did, but the disease kept
Bart Leger:taking more of him. He started wandering out of the house
Bart Leger:toward the highway, and she could not always get him back.
Bart Leger:Then came the day she couldn't get him back at all. She stood
Bart Leger:in the middle of the with a man she loved. Cars coming, and she
Bart Leger:hit the end of what she could do alone. Right there, she prayed
Bart Leger:out loud, Lord, I can't do this by myself anymore. I thought I
Bart Leger:could, but I've got to have help. We'll come back to what that
Bart Leger:prayer set in motion. But
Bart Leger:first, welcome to Daily Devotions for Busy Lives. I'm
Bart Leger:Bart Leger. I've been talking with caregivers for this book,
Bart Leger:and the woman you just heard from is one of them. Something
Bart Leger:comes up in almost every conversation. These men and
Bart Leger:women were grieving people who were still alive. A husband
Bart Leger:still breathing in the next room. A mother who still knew their
Bart Leger:name most days. already they were losing them. It has changed
Bart Leger:how I think about my own people and the time I still have with
Bart Leger:them. Maybe you know what that feels like. You begin to grieve
Bart Leger:long before the funeral. It shows up when your father asks
Bart Leger:you the same question three times in an hour. Or when your
Bart Leger:mother calls you by your brother or your sister's name. The
Bart Leger:person who raised you is losing pieces of themselves right in
Bart Leger:front of you. And there's nothing you can do to stop it.
Bart Leger:You're watching someone you love disappear a little at a time.
Bart Leger:And you're expected to keep smiling and keep going. People
Bart Leger:ask, how your dad's doing? And you don't have words for what it
Bart Leger:is to mourn a man who's sitting right there at the table. And
Bart Leger:that grief, it's real, even though nobody's died yet. And
Bart Leger:it's lonely, because the world doesn't necessarily have a
Bart Leger:category for it. There's no casserole for the slow goodbye.
Bart Leger:No card that says, sorry your mother forgot your wedding. So
Bart Leger:you go through it mostly by yourself. And you wonder if
Bart Leger:you're allowed to grieve someone who's still there. You are. And
Bart Leger:there's an old prayer in Scripture that speaks right to
Bart Leger:where you are. Long before any of us faced a diagnosis, Moses
Bart Leger:prayed a prayer about time. Psalm 90, verse 12 says, So
Bart Leger:teach us to number our days, that we may gain a heart of
Bart Leger:wisdom. Numbering your days means facing the truth that time
Bart Leger:with the people you love is short and precious, and letting
Bart Leger:that shape how you spend it. Moses was asking for the wisdom
Bart Leger:to treat each day like it mattered, because each one does.
Bart Leger:Here's what that wisdom looks like when your parent is fading,
Bart Leger:or maybe your spouse. You may not have the father or the
Bart Leger:spouse you had 10 years ago. The person who fixed everything may
Bart Leger:be gone already in ways that used to define them. But you
Bart Leger:still have this version of and this version won't be here
Bart Leger:forever either. So, numbered these days, don't wait for the
Bart Leger:parent or the spouse you remember to come back before you
Bart Leger:love the who's here now. That means speaking the words that
Bart Leger:need to be said while there's still someone to hear them. Tell
Bart Leger:your father you love him, even if he can't say it back the way
Bart Leger:he used to, and say the thing you've been saving for the right
Bart Leger:moment. Some of the caregivers I talked with said their one
Bart Leger:regret was waiting. Sure, there would be more time than there
Bart Leger:was. Then bring what you're grieving to God. He is not far
Bart Leger:from this. He's with your parent or your spouse, the one losing
Bart Leger:their memory, holding them even in the confusion.
Bart Leger:She got him to a hospital, and they admitted him. The next
Bart Leger:morning, he was bedridden, and no one could tell her why. Sure,
Bart Leger:her decision on that highway had pushed him over the edge. She
Bart Leger:called it torment, sitting by his bed, grieving a husband who
Bart Leger:was still breathing. Slowly, she came to see it another way. She
Bart Leger:had asked God for help, and in her words, you don't know how
Bart Leger:he's going to help you. She believes he answered, keeping
Bart Leger:her husband off that road and other people safe, too. Her
Bart Leger:advice to anyone in the same place is simple. Reach out for
Bart Leger:help and pray. The Lord, he will pull you through it, she says,
Bart Leger:but it's going to be hard. Listen to that line again. You
Bart Leger:don't know how he's going to help you. She asked for help at
Bart Leger:the end of what she could do, and he answered in the way she
Bart Leger:never would have chosen. But yet, he pulled her through. Here's
Bart Leger:today's challenge. Think of the person you're grieving while
Bart Leger:they're still here. Do one thing today that you would regret
Bart Leger:leaving unsaid. Call them or sit beside them and tell them what
Bart Leger:they have meant to you, even if they can't fully take it in. If
Bart Leger:they're past the point of understanding, say it to God on
Bart Leger:their behalf and let him take it from there. Number this day.
Bart Leger:It's the one you'll wish you had back. Father, some of us are
Bart Leger:grieving people who are still alive. We're watching someone we
Bart Leger:love lose themselves a piece at a time, and we don't have the
Bart Leger:words for how much it hurts. Teach us to number our days.
Bart Leger:Give us the wisdom to love the person in front of us today and
Bart Leger:the courage to say what needs to be said while there's still time.
Bart Leger:Be near to the ones who are fading and hold them when their
Bart Leger:minds can't.
Bart Leger:This podcast runs on the generosity of listeners just
Bart Leger:like you. If Daily Devotions for Busy Lives has encouraged you,
Bart Leger:would you consider supporting it with a one-time gift or by
Bart Leger:becoming a monthly supporter? Every contribution helps keep
Bart Leger:these devotions coming every week. You can give at
Bart Leger:dailydevotionsforbusylives.com slash support. Thank you so much.
Bart Leger:Thanks for joining me on Daily Devotions for Busy Lives. with
Bart Leger:the one who's fading, and with you who loves them. Number these
Bart Leger:days while you have them. Come back next time for more
Bart Leger:encouragement to help you live grounded in God's truth. Until
Bart Leger:then, God bless, and have a great day.